This afternoon Eliza was discharged from the hospital. Dan and I weren't sure if she was ready to go, or if we were ready for her to go. They would have let her stay another day, but Eliza was very ready to go 'home'. Home for the next few weeks is an extended stay hotel in a nearby town. Before we left, we had a delightful visit with Sue Zell's sister-in-law. It was so kind of her to send a visitor when we are so far away from home.
After feeling overwhelmed about how we get our daughter, whose knees have to remain straight and can't bear weight on either leg, into our car, we decided to hire a handicap accessible taxi. It actually worked just fine to get us to where we needed to go.
Eliza is still doing well, but it is really hard. It's painful and her stomach is upset by medication and everything else. Even a fairly simple act, like getting in and out of bed, is a long and difficult process. The knee immobilizers don't really fit quite right and don't give her confidence that they will support her knees and avoid pain when she transfers in and out of her chair.
Even though we all realize how fortunate she is that this is a temporary situation, it is a hard reality right now. We also realize how far she has come already in the last couple of years and the hope of even better mobility and reduced pain in the future. Today was a day of many emotions.
On the good side, just now we had a yummy dinner, prepared by grandma. Eliza reports that her pain is fairly low, even though its time for her next dose of medications. Ice cream will be a treat later tonight! Both Eliza and I are grateful to not sleep at the hospital tonight.
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